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Summary Toolkit

This toolkit of resources provides tribal leaders and citizens with a quick overview of issues related to genetics research.

Frequently Asked Questions: Answers to commonly asked questions about genetics research and tribes.

Questions to Consider in Decision Making Around Genetic Testing: A checklist of questions for an individual to consider in making decisions about participating in genetics research studies.

Data Control Options for American Indian/Alaska Native Communities: This information sheet provides a quick overview of data sharing and options for tribes to maintain control over data.

Considerations in Using Genetic Testing for Tribal Enrollment: A brief discussion of genetic testing and tribal enrollment.

Executive Summary: Enhancing Genomic Research through a Native Lens: Information about involving more Native people in science careers.

How Do We Decide?

A Guide for American Indian/Alaska Native Communities

The interactive decision guides provide a set of interactive questions to help you reflect on your feelings regarding research. Read More